The report examined the question: how can we ethically undertake the research needed to ensure their healthcare services are safe and effective, given that research often involves burdens and risks? Moreover, what role should children, young people and parents themselves play in influencing how research studies are carried out, and how can their voices help influence the wider research agenda? There were 19 key recommendations.

Tool to measure and evaluate the quality of survivor involvement in research about survivors.

An influential framework for children's participation, which covers the many levels at which children can contribute and participate.