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Data Set Name
Description
Publishing Org
Data Set Short Name
Link to Information
Use Case Example
500 Cities Project (after 2019 see CDC PLACES)
Data on chronic disease measures for major cities in the US. The 500 Cities Project provides data on health-related behaviors, chronic conditions, and healthcare access in 500 of the largest U.S. cities. It helps identify health disparities and improve local health outcomes
Assessing the impact of urban environment on health. Analysts can leverage 500 Cities Project data to study health behaviors and outcomes in urban areas, identify disparities in healthcare access, inform public health interventions, and support city-level health policy decisions.
US Census Bureau Health Insurance Data
Data related to health insurance coverage in the US. This dataset provides information on health insurance coverage and access to healthcare services, collected through the ACS. It supports research on health insurance trends and access to care.
Examining the impact of policy changes on insurance coverage rates Analysts can utilize U.S. Census Bureau Health Insurance Data to assess health insurance coverage rates, study disparities in access to care, inform healthcare policy decisions, and support research on healthcare access and affordability.
Area Health Resources Files (Workforce & Diversity)
Info from over 50 data sources on Health Care Professions, Health Facilities, Population Characteristics, Economics, Health Professions Training, Hospital Utilization, Hospital Expenditures, and Environment at the county, state, and national levels.. AHRF offers data on healthcare resources, health professions, and population health at the county and state levels. It supports healthcare workforce planning and analysis.
Studying healthcare accessibility and planning healthcare services at the local level. Analysts can use AHRF data to assess healthcare workforce distribution, identify areas with healthcare shortages, support healthcare workforce planning, and inform policies and initiatives aimed at improving healthcare access and distribution of healthcare resources.
Social Determinants of Health Database
This is a composite list of multiple different SDOH data sources, vetted by AHRQ. This database consists of data from various organizations, including CDC, CMS, and more. contains information about various social determinants of health, such as income, education, and housing, that impact health outcomes. The SDOH database was developed to make it easier to find a range of well-documented, readily linkable SDOH variables across domains without having to access multiple source files, facilitating
Rather than visiting numerous sites such as Census, CDC Places, and others to pull together all SDOH data you might want, AHRQ has made a pre-vetted list of top data indicators that one might use to analyze SDOH from a collection of sources. Analysts can use this data to assess and address health disparities, identify vulnerable populations, and develop targeted interventions and policies to improve public health.
AIDSvu
HIV prevalence data by various geographic levels
Emory University’s Rollins School of Public Health in partnership with Gilead Sciences, Inc. and the Center for AIDS Research at Emory University
AIDSVu
https://aidsvu.org/
Identifying communities in need of targeted HIV prevention efforts. Useful for public health professionals and researchers to analyze the geographic and demographic distribution of HIV for targeted interventions and resource allocation.
American Community Survey (ACS)
US Census Bureau's annual survey on demographic, economic, and housing information. ACS provides detailed demographic, social, economic, and housing data for the United States. It includes annual survey results.
U.S. Census Bureau
American Community Survey
https://data.census.gov/
Examining the correlation between income and health outcomes. Analysts can use ACS data for demographic studies, socioeconomic research, community planning, policy analysis, and resource allocation based on population characteristics.
View geographic data on antibiotic resistance. The AR Lab Network tracks antibiotic resistance in healthcare settings to combat the spread of drug-resistant infections. It monitors bacterial resistance patterns and informs antibiotic prescribing practices.
Centers for Disease Control and Prevention
AR Lab/AR & PS Lab
https://arpsp.cdc.gov/
Monitoring trends in antibiotic resistance. Analysts can utilize AR Lab Network data to study antibiotic resistance trends, assess the prevalence of drug-resistant infections, guide antimicrobial stewardship programs, and inform infection control strategies in healthcare settings.
Agency for Toxic Substances and Disease Registry
Toxic substance and health data. ATSDR provides data on environmental exposures, hazardous substances, and their impact on public health. It focuses on assessing and preventing health risks related to toxic substances.
Assessing community health impacts of environmental exposures. Analysts can use ATSDR data to study environmental health hazards, assess exposure risks, investigate health outcomes associated with toxic substances, and support public health interventions and policies.
National Center for Biotechnology Information
Genetic and biomedical dataset repository. NCBI provides access to various biological and healthcare-related databases, including genomic, clinical, and medical literature data.
National Center for Biotechnology Information
Biomedical and Genomic Informaton
https://www.ncbi.nlm.nih.gov/
Conducting genetic and biomedical research. Analysts can utilize NCBI databases for bioinformatics, genomic research, clinical data analysis, literature reviews, and data-driven biomedical research in fields such as genetics, genomics, and molecular biology.
Bureau of Primary Health Care Data
Data on primary care/FQHC services and workforce. The Bureau of Primary Health Care provides data on primary care services delivered by Federally Qualified Health Centers (FQHCs) and other safety-net providers. It supports access to primary care in underserved areas.
Health Resources and Services Administration
BPHC
https://bphc.hrsa.gov/data-reporting
Assessing primary care workforce capacity. Analysts can utilize Bureau of Primary Health Care Data to assess primary care services in underserved communities, monitor FQHC performance, support primary care research, and inform policies and programs to enhance access to primary care services.
Behavioral Risk Factor Surveillance System
BRFSS is a nationwide survey collecting data on health-related behaviors, chronic conditions, and preventive health practices among adults in the United States. It supports public health research and interventions.
Assessing community health needs and planning public health interventions. Analysts can use BRFSS data to examine health behaviors and risk factors, monitor chronic disease prevalence, assess the impact of health interventions, and guide public health policies aimed at behavior change and disease prevention.
Occupational Employment Statistics
Employment and wage data. BLS provides data on employment and wage estimates by occupation and industry. It offers insights into the labor market and workforce composition.
U.S. Bureau of Labor Statistics
Bureau of Labor Statistics
https://www.bls.gov/oes/data-overview.htm
Studying healthcare employment trends and wage disparities. Analysts can use BLS Occupational Employment Statistics to study employment trends, assess occupational wage disparities, and support workforce planning and policy development.
Child and Adolescent Health Measurement Initiative
Child health and healthcare quality data. CAHMI collects data on child and adolescent health, including well-being, healthcare access, and quality of care. It aims to improve health outcomes for children and adolescents.
Bloomberg School of Public Health at Johns Hopkins University
CAHMI NSCH, NS-CSHCN and NHIS
https://www.childhealthdata.org/
Analyzing the quality of pediatric care. Analysts can utilize CAHMI data to assess the health status of children and adolescents, identify healthcare disparities, evaluate healthcare interventions for young populations, and inform child health policy and programs.
CHRONIC CONDITION INDICATOR REFINED (CCIR) FOR ICD-10-CM
This list of ICD Diagnoses identifies a diagnosis as indicating of a chronic condition (or non-chronic). CCIR provides a standardized method for identifying chronic conditions in healthcare data, allowing for the analysis of chronic disease prevalence and its impact on healthcare utilization.
For any diagnosis code, identify if that is considered a chronic condition or not for classification/grouping and analysis purposes. Analysts can use CCIR to study patterns of chronic conditions, assess healthcare resource utilization for chronic disease management, and evaluate the effectiveness of interventions for chronic disease prevention and management.
CLINICAL CLASSIFICATIONS SOFTWARE REFINED (CCSR) FOR ICD-10-CM DIAGNOSES
Maps diagnosis code to clinical condition category (e.g. disease) crosswalk that groups all like-diagnosis codes into higher-level categories that represent diseases. It is also good to use as a simple diagnosis code-to-description crosswalk. CCSR provides a hierarchical categorization of ICD-10-CM diagnosis codes, making it easier to analyze and group diagnoses for research and healthcare quality improvement.
For example, identify the list of specific ICD-10 diagnosis codes that represent some form of "Diabetes mellitus." Analysts can use CCSR to enhance the analysis of healthcare data by grouping diagnoses into clinically meaningful categories, facilitating research on disease patterns, and supporting quality improvement initiatives.
CLINICAL CLASSIFICATIONS SOFTWARE REFINED (CCSR) FOR ICD-10-PCS PROCEDURES
A very high-level grouper that groups CPT/HCPCs procedure codes into like-procedures. CCSR for ICD-10-PCS Procedures offers a hierarchical categorization of ICD-10-PCS procedure codes, simplifying the analysis of procedure data and enabling research on healthcare procedures.
Identify all specific CPTs/HCPCs that represent some form of "Inguinal and femoral hernia repairs." Analysts can use CCSR for ICD-10-PCS Procedures to group and analyze procedure codes, support research on surgical practices, and evaluate the utilization of healthcare procedures in various clinical settings.
CMS Chronic Conditions Data Warehouse
NOTE: THIS IS NOT OPEN SOURCE but it is a very rich dataset so we are including it: a research database for Medicare and Medicaid beneficiary, claims, and assessment data. CCW contains Medicare and Medicaid claims data related to chronic conditions. It supports research on chronic disease management and healthcare utilization. For higher-level open source data like this, refer to the CMS Medicare/Medicaid Public Use Files
Centers for Medicare & Medicaid Services
CCW
https://www2.ccwdata.org/web/guest/home/
Analyzing healthcare utilization among patients with chronic conditions. Analysts can utilize CCW data to study chronic disease prevalence, assess healthcare resource utilization for chronic conditions, evaluate the impact of interventions, and inform policies and programs aimed at improving chronic disease management and outcomes.
CDC Mortality Files
Detailed mortality and cause of death data. Detailed Mortality Files in CDC WONDER contain information on cause-specific mortality, demographics, and geographic data. They support in-depth analysis of mortality trends.
Centers for Disease Control and Prevention
CDC Mortality
https://wonder.cdc.gov/ucd-icd10.html
Investigating geographic patterns of mortality rates. Analysts can use Detailed Mortality Files to study causes of death, assess mortality disparities, identify emerging health threats, and inform public health policies and interventions related to mortality and disease prevention.
National Ambulatory Medical Care Survey
Outpatient medical care data. NAMCS collects data on visits to ambulatory care settings, including physician offices, clinics, and outpatient departments. It provides insights into healthcare utilization patterns.
Centers for Disease Control and Prevention
CDC NAMCS
https://www.cdc.gov/nchs/ahcd/index.htm
Analyzing prescribing patterns in outpatient settings, say. Analysts can utilize NAMCS data to study ambulatory care trends, assess the characteristics of outpatient visits, investigate healthcare delivery in ambulatory settings, and inform healthcare research, planning, and policy decisions.
CDC National Program of Cancer Registries
Cancer registry data from CDC. NPCR collects data on cancer incidence from population-based cancer registries across the United States. It provides essential information for cancer surveillance and research.
Centers for Disease Control and Prevention
CDC NPCR
https://gis.cdc.gov/Cancer/USCS/#/AtAGlance/
Studying cancer incidence and treatment outcomes. Analysts can use NPCR data to monitor cancer incidence and trends, assess cancer disparities, support cancer research, and guide cancer prevention and control efforts, including early detection and treatment initiatives.
CDC National Vital Statistics System
Birth and death data from CDC. NVSS compiles vital statistics data, including birth and death certificates, to track births, deaths, and other vital events in the United States. It serves as a primary source for health statistics.
Centers for Disease Control and Prevention
CDC NVSS
https://www.cdc.gov/nchs/nvss/index.htm
Studying trends in birth and mortality rates. Analysts can utilize NVSS data to analyze population demographics, study causes of death, monitor vital events, assess life expectancy, and support various health-related research and policy initiatives.
Vital Statistics Online
Birth, death, marriage, and divorce data. Vital Statistics Online offers access to vital statistics data, including birth, death, marriage, and divorce records. It provides information on vital events in the United States.
Researching population trends and public health issues related to vital events. Analysts can use Vital Statistics Online to study demographic trends, assess population health, track vital events, inform public health programs, and support research on vital statistics and their impact on healthcare and society.
CDC Public Health Image Library
Collection of public health-related images. PHIL is a collection of public health-related images, videos, and multimedia materials. It serves as a valuable resource for health communication, education, and awareness campaigns.
Centers for Disease Control and Prevention
CDC PHIL
https://phil.cdc.gov/
Creating educational materials for public health campaigns. Analysts and health communicators can use PHIL to access high-quality images and multimedia materials for health education, public health campaigns, research presentations, and communication materials aimed at promoting public health awareness and knowledge.
500 Cities & PLACES (an expansion of the original 500 Cities Project post-2019)
Health data estimates at county, place, census tract, and ZIP Code Tabulation Area levels for 29 measures: 13 for health outcomes, 9 for preventive services use, 4 for chronic disease-related health risk behaviors, and 3 for health status. This initiative provides data on health-related factors at the city and census tract levels, offering insights into social determinants of health and local health conditions.
Centers for Disease Control and Prevention
CDC PLACES
https://www.cdc.gov/places/
Look up health of a specific neighborhood (tract) or county to understand key indicators for the region, such as: chronic condition prevalences, preventative healthcare trends (dental care, mammographies, etc.), risk behaviors (smoking, etc.), and mental health status, among other things. Analysts can use 500 Cities & PLACES data to assess community health disparities, identify factors impacting local health outcomes, support targeted public health interventions, and inform urban planning and po
CDC Pregnancy Risk Assessment Monitoring System
Maternal and infant health data. PRAMS collects data on maternal behaviors and experiences before, during, and after pregnancy. It helps identify maternal health risks and inform maternal and child health programs.
Centers for Disease Control and Prevention
CDC PRAMS
https://www.cdc.gov/prams/index.htm
Evaluating maternal and infant health programs. Analysts can use PRAMS data to study maternal health behaviors, assess prenatal care utilization, investigate maternal and infant health outcomes, and guide interventions to improve maternal and child health.
CDC Social Determinants of Health Data
A list of social determinants data for exploring health disparities. This dataset includes social determinants of health indicators such as income, education, housing, and access to healthcare. It aims to highlight factors A impacting health outcomes.
Examining correlations between income level and health outcomes, for instance. Analysts can utilize Social Determinants of Health Data to assess health disparities, study the impact of social determinants on health, inform equity-focused policies and interventions, and support research on the social determinants of health and their influence on public health outcomes.
CDC Vaccine Adverse Event Reporting System
Data on vaccine safety. VAERS collects reports of adverse events following vaccination. It monitors vaccine safety and helps identify potential vaccine-related risks. Download using the CDC WONDERS tool.
Monitoring vaccine safety and effectiveness. Analysts can use VAERS data to assess vaccine safety, investigate adverse events related to vaccination, support vaccine research and development, and guide vaccine recommendations and policies to ensure the safety and effectiveness of vaccines.
CDC WONDER
CDC WONDER is the system for disseminating Public Health data and information. A rich, single point of access to a wide variety of reports and datasets. WONDER is an online tool that provides access to a wide range of public health data and information, including mortality, morbidity, and population health data. It supports public health research, surveillance, and analysis.
Centers for Disease Control and Prevention
CDC WONDER
https://wonder.cdc.gov/
Analyzing trends in mortality rates across different demographics, for instance. Analysts can utilize WONDER to access a wealth of public health data, perform data queries, conduct epidemiological research, monitor health trends, and support evidence-based decision-making in various public health domains.
CHQPR Saving Rural Hospitals
This dataset includes information on rural hospitals in the United States, including their financial viability, service offerings, and challenges. It supports rural healthcare analysis and policy development. Rural Hospital list, including:
- CAH = Critical Access Hospital (most rural hospitals are classified as Critical Access Hospitals)
- REH = Rural Emergency Hospital
- IPPS = standard Inpatient Prospective Payment System payment (most urban hospitals are are classified as IPPS hospitals).
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Center for Healthcare Quality and Payment Reform
CHQPR
https://ruralhospitals.chqpr.org/Data1.html
Analysts can use Saving Rural Hospitals data to assess the financial sustainability of rural hospitals, study access to healthcare services in rural areas, inform rural health policy decisions, and support efforts to preserve access to care in underserved rural communities.
CMS Data Navigator
Repository of data on healthcare services, cost, and quality provided by CMS. CMS Data Navigator provides access to various datasets related to healthcare services, utilization, and payments. It serves as a resource for healthcare data and information.
Centers for Medicare & Medicaid Services
CMS Data Navigator
https://data.cms.gov/
Assessing variations in Medicare payments across different regions, as an example. Analysts can use CMS Data Navigator to access and explore healthcare data, perform data queries, conduct research on healthcare utilization and payments, monitor healthcare trends, and support healthcare policy and payment reform efforts.
CMS Drug Spending Dashboards (Medicare/Medicaid)
Data on prescription drug spending in Medicare and Medicaid. The CMS Drug Spending Dashboards provide data on prescription drug spending in the Medicare and Medicaid programs. It offers insights into drug costs and utilization.
Analyzing trends in prescription drug costs. Analysts can use Drug Spending Dashboards to analyze prescription drug spending trends, assess the impact of drug prices on healthcare costs, inform drug pricing policies, and support research on pharmaceutical economics and drug affordability.
CMS Fast Facts
CMS Fast Facts includes summary information on total program enrollment, utilization, expenditures, as well as total number of Medicare providers including physicians by specialty area. Generally, data are refreshed in March and August of the calendar year and may vary based on data availability.
Centers for Medicare & Medicaid Services
CMS Fast Facts
https://data.cms.gov/fact-sheet/cms-fast-facts
Down data about total program enrollment, utilization, expenditures, as well as total number of Medicare providers including physicians by specialty area in PDF or Excel.
CMS Home Health Compare
Data on home health agencies. Home Health Compare offers data on the quality of care provided by home health agencies. It includes information on patient outcomes and satisfaction. View the data on Care Compare: https://www.medicare.gov/care-compare/
Comparing quality of care between home health agencies. Analysts can use Home Health Compare data to evaluate the quality of care delivered by home health agencies, assess patient outcomes in home healthcare settings, inform patient choice of providers, and guide quality improvement efforts in home health services.
CMS Hospice Compare
Hospice quality data. Hospice Compare provides data on the quality of care provided by hospice agencies. It includes information on patient care experiences and outcomes. Download all the data at: https://data.cms.gov/provider-data/topics/hospice-care
Comparing the quality of care among hospice providers. Analysts can utilize Hospice Compare data to assess the quality of hospice care, evaluate patient and family satisfaction with hospice services, support hospice provider selection, and guide quality improvement initiatives in end-of-life care.
CMS Hospital Readmission Reduction Program
Data on hospital readmission rates. This program aims to reduce hospital readmissions by penalizing hospitals with excessive readmission rates. It includes data on hospital readmission rates and penalties. CMS reports hospitals’ HRRP data on data.cms.gov at https://data.cms.gov/provider-data/dataset/9n3s-kdb3
Identifying factors associated with hospital readmissions. Analysts can use Hospital Readmission Reduction Program data to assess hospital readmission rates, identify factors contributing to readmissions, support hospital quality improvement efforts, and evaluate the impact of readmission reduction policies on healthcare outcomes.
CMS Inpatient Prospective Payment System (IPPS) Provider Summary
Data on services rendered by over 3,000 hospitals. The IPPS Provider Summary includes data on inpatient hospital services, payments, and quality measures. It supports reimbursement under the Medicare Inpatient Prospective Payment System. Learn more about the IPPS payment system here: https://www.cms.gov/cms-guide-medical-technology-companies-and-other-interested-parties/payment/ipps#:~:text=Under%20the%20IPPS%2C%20Medicare%20payment,rates%20for%20each%20hospital%20discharge.
Analyzing costs and trends related to inpatient care. Analysts can utilize IPPS Provider Summary data to analyze hospital billing and payments, assess hospital performance on quality measures, support healthcare cost analysis, and inform Medicare reimbursement policies for inpatient care.
CMS Medicare Geographic Variation
Geographic variation in Medicare services and payments. This dataset provides information on Medicare spending and utilization variations across geographic regions. It helps identify regional healthcare disparities.
Studying regional variations in Medicare spending. Analysts can use Medicare Geographic Variation data to study healthcare spending variations, assess healthcare quality across regions, identify factors contributing to regional disparities, and inform efforts to reduce healthcare inequalities and improve access to care.
CMS Nursing Home Compare
Nursing home quality data. Nursing Home Compare offers data on the quality of care provided by nursing homes, including patient outcomes and staffing levels. Full data can be downloaded at data.cms.gov: https://data.cms.gov/provider-data/topics/nursing-homes
Comparing the quality of care of different nursing homes. Analysts can use Nursing Home Compare data to evaluate nursing home quality, assess resident outcomes, inform nursing home selection, and guide quality improvement initiatives in long-term care facilities.
CMS Skilled Nursing Facility Compare
Quality of care data for skilled nursing facilities. Skilled Nursing Facility Compare provides data on the quality of care provided by skilled nursing facilities, including patient outcomes and staffing levels. Find the data at: https://data.cms.gov/provider-data/topics/nursing-homes
Comparing performance of skilled nursing facilities in a region. Analysts can use Skilled Nursing Facility Compare data to evaluate the quality of care in skilled nursing facilities, assess resident outcomes, support facility selection, and guide quality improvement efforts in long-term care settings.
County Health Rankings & Roadmaps
Annual assessments of health for nearly every county in the nation. County Health Rankings & Roadmaps offer county-level data on various health factors and outcomes, including social determinants of health, to assess and improve community health.
County Health Rankings
County Health Rankings
https://www.countyhealthrankings.org/
Identifying key areas for local health policy intervention. Analysts can use County Health Rankings & Roadmaps data to assess community health disparities, identify social determinants of health affecting population health, inform public health interventions, and support local health policy and planning efforts.
National Survey of Children with Special Health Care Needs
Data on children with special health care needs. NS-CSHCN gathers data on children with special healthcare needs, their healthcare experiences, and access to services. It aims to improve care for these children.
Centers for Disease Control and Prevention
CSHCN
https://www.cdc.gov/nchs/slaits/cshcn.htm
Assessing healthcare access and utilization for children with special needs. Analysts can use NS-CSHCN data to study the healthcare needs of children with special healthcare needs, assess access to healthcare services, inform interventions to improve care coordination, and support research on pediatric healthcare disparities and quality of care.
Dartmouth Atlas of Health Care
The Dartmouth Atlas of Health Care provides data on healthcare utilization, spending, and quality across different regions in the United States. It assesses variations in healthcare delivery. Find more data to download here: https://data.dartmouthatlas.org/
The Dartmouth Atlas of Healthcare
Dartmouth Atlas
https://www.dartmouthatlas.org/
Analysts can use the Dartmouth Atlas of Health Care to study regional variations in healthcare, assess healthcare quality and efficiency, identify areas for healthcare improvement, and inform healthcare policy and resource allocation decisions.
CDC School Health Profiles
School health policies and practices data. School Health Profiles gather data on school health policies and practices, including nutrition, physical activity, and tobacco use. It supports efforts to improve the health of students in schools.
Assessing school health policies and their impact on student health. Analysts can use School Health Profiles data to assess school health policies, study health-related practices in educational settings, identify areas for improvement in school health programs, and inform interventions to promote student well-being and health.
Data USA
Data USA is an extensive collection of data from various sources, including healthcare data. It offers a platform for visualizing and exploring data on various topics, including healthcare, education, and more. Tons of descriptive social, economic, demographic, etc. data about cities, state, and regions. Sources data from multiple sites.
Deloitte, Datawheel
Data USA
https://datausa.io/
Pull a data profile about a region's key characteristics very quickly for health equity research, program/policy design, regional comparisons, etc. Analysts can use Data USA to visualize and analyze healthcare data, explore demographic and health-related trends, support research in various domains, and inform data-driven decision-making in healthcare and other sectors.
FDA Drug Data
Drug information from the US Food and Drug Administration. FDA Drug Data includes information on FDA-approved drugs, their active ingredients, labeling, and regulatory actions. It serves as a comprehensive source of drug-related information.
Analysts can utilize FDA Drug Data to access information on FDA-approved drugs, study drug labeling, support drug research and development, and inform regulatory decisions related to drug approvals, safety, and labeling.
CDC National Environmental Public Health Tracking Network
Environmental health data. Brings together health data and environmental data from national, state, and city sources on environments and hazards, health effects, and population health. EPHTN provides data on environmental exposures, health outcomes, and population characteristics to assess the impact of environmental factors on public health. It supports research and interventions related to environmental health.
Centers for Disease Control and Prevention
EPH Tracking
https://ephtracking.cdc.gov/DataExplorer/
Studying correlations between environmental factors and public health. Download data impacting environmental health and outcomes such as air quality, drinking water, birth defects, etc. Analysts can use EPHTN data to investigate environmental health risks, study associations between environmental exposures and health outcomes, guide environmental policy decisions, and inform public health interventions to reduce environmental health hazards.
CMS End-Stage Renal Disease Quality Initiative
Quality data for dialysis centers. The CMS ESRD Quality Initiative focuses on improving the quality of care for patients with end-stage renal disease (ESRD). It includes data on dialysis facilities and ESRD patient outcomes. View the data on Care Compare: https://www.medicare.gov/care-compare/
Comparing the quality of care among dialysis centers. Analysts can utilize ESRD Quality Initiative data to assess the quality of care in dialysis facilities, monitor ESRD patient outcomes, identify areas for quality improvement, and inform policies and programs to enhance ESRD care and patient outcomes.
FDA Adverse Event Reporting System dashboard. The FAERS Public Dashboard provides access to data on adverse events and medication errors reported to the FDA. It helps monitor the safety of drugs and medical products. Download more data here: https://www.fda.gov/drugs/questions-and-answers-fdas-adverse-event-reporting-system-faers/fda-adverse-event-reporting-system-faers-latest-quarterly-data-files
Food and Drug Administration
FAERS
https://open.fda.gov/data/faers/
Monitoring adverse events related to medications and devices. Analysts can use the FAERS Public Dashboard to analyze adverse event reports, detect safety signals for medications and medical devices, support pharmacovigilance research, and inform drug and device safety assessments and regulatory decisions.
CDC FluView
Influenza surveillance data. FluView offers information on influenza activity, flu-like illness, and vaccination coverage. It helps track and monitor seasonal influenza trends and outbreaks.
Monitoring and responding to influenza outbreaks. Analysts can leverage FluView data to monitor influenza activity, assess the effectiveness of flu vaccination campaigns, support pandemic preparedness, and guide public health responses to flu outbreaks.
Health Care Cost and Utilization Report (HCCUR)
State spending trends and annual healthcare cost and utilization reports. They also make their dataset available for research. Their hallmark report is annual. HCCUR presents data on healthcare spending, utilization, and insurance coverage in the United States. It includes information on different aspects of healthcare cost and utilization.
Health Care Cost Institute
HCCUR
https://healthcostinstitute.org/
Investigate cost of services and trends of services over time. Analysts can use HCCUR data to analyze healthcare spending trends, assess healthcare utilization patterns, study the impact of insurance coverage, support health economics research, and inform healthcare policy decisions.
Healthcare Cost and Utilization Project (HCUP)
Hospital inpatient and emergency department data. HCUP provides a wide range of healthcare data, including hospitalization, emergency department visits, and ambulatory care. It supports research and analysis of healthcare trends. Aggregate and high-level data is open source. More detailed data is also available for purchase/licensing.
Agency for Healthcare Research and Quality
HCUPnet
https://datatools.ahrq.gov/hcupnet/
Studying trends in hospital utilization and costs. Analysts can leverage HCUP data to analyze healthcare utilization patterns, assess the financial impact of healthcare services, explore disparities in care, and conduct research on healthcare quality and effectiveness. Analysts could also utilize HCUPnet to perform real-time data queries, explore healthcare trends, create custom reports, and conduct research on healthcare utilization, costs, and outcomes.
HealthData.gov
A one-stop platform providing access to datasets from various agencies within the federal government. A federal government website dedicated to making high-value health data more accessible to entrepreneurs, researchers, and policymakers for better health outcomes.
U.S. Department of Health & Human Services
HealthData.gov
https://healthdata.gov/
Ideal for researchers and policymakers to access a wide array of health-related data for analysis, policy formulation, and entrepreneurial ventures in healthcare, such as creating a geospatial map of health clinic locations.
Healthy People Indicators, formerly Health Indicators Warehouse
National health indicators with some breakouts by state and community-level regions. The Health Indicators Warehouse provides access to a wide range of health-related indicators and data, allowing users to assess health trends and disparities at the national, state, and local levels.
Assessing community health and driving public health action. Analysts can use the Health Indicators Warehouse to access health indicators, monitor health status, assess health disparities, support public health research, and inform healthcare planning and policy development at various geographic levels.
Healthcare Effectiveness Data and Information Set
Performance metrics for managed care/health plans. HEDIS is a comprehensive set of performance measures used to assess the quality of healthcare services and health plan performance. It covers various aspects of healthcare quality.
National Committee for Quality Assurance
HEDIS
https://store.ncqa.org/data-and-reports.html
Evaluating the performance of health insurance plans. Analysts can utilize HEDIS data to measure and improve healthcare quality, assess healthcare plan performance, support quality improvement initiatives, inform healthcare policy decisions, and compare healthcare organizations' quality outcomes.
CDC HIV Surveillance Data
HIV incidence and prevalence reports, including information on HIV/AIDS cases, including demographic and epidemiological data. It assists in monitoring and controlling the HIV epidemic in the United States.
Targeting interventions for populations at high risk of HIV. Analysts can use HIV Surveillance Data to track HIV/AIDS trends, identify high-risk populations, evaluate the impact of prevention and treatment programs, and guide public health strategies to reduce HIV transmission and improve care for those affected.
Healthy Marketplace Index
Drivers of health care spending across 186 U.S. cities using nearly 4.2 billion commercial claims from 2016 to 2020. The Healthy Marketplace Index provides data on the health insurance marketplace in the United States. It offers insights into marketplace competition, affordability, and access to health insurance coverage.
Kaiser Family Foundation
HMI
https://healthcostinstitute.org/
Research hospital market concentration in a region, compare price & utilization metrics for certain services, get a snapshot of metro areas healthcare market and spending. Analysts can use the Healthy Marketplace Index to assess health insurance marketplace dynamics, study competition among insurers, inform healthcare policy decisions related to marketplace regulation, and support research on health insurance access and affordability.
CMS Hospital Compare
CMS data on hospital quality measures. Hospital Compare offers data on hospital quality, including clinical performance measures, patient experiences, and mortality rates. Download the data at: https://data.cms.gov/provider-data/
Comparing hospital performance on patient satisfaction. Analysts can utilize Hospital Compare data to assess hospital quality, compare hospital performance on various measures, inform patient choices, support healthcare quality improvement, and guide healthcare decision-making.
HRSA Health Workforce Data
Data on healthcare workforce capacity. HRSA Health Workforce Data provides information on the healthcare workforce, including data on healthcare providers, their specialties, and geographic distribution.
Health Resources and Services Administration
HRSA Workforce
https://data.hrsa.gov/topics/health-workforce
Projecting future healthcare workforce needs. Analysts can utilize HRSA Health Workforce Data to assess healthcare workforce composition, support workforce planning, identify healthcare shortages, and inform policies and programs aimed at strengthening the healthcare workforce in specific areas or specialties.
National Library of Medicine Health Services Research Projects in Progress
Database of ongoing health services research projects. Medical literature, clinical trials, and health information resources. NLM offers access to a wide range of biomedical literature, databases, and resources. It supports biomedical research and healthcare.
National Library of Medicine
HSRProj
https://www.nlm.nih.gov/hsrph.html
Identifying research gaps in health services. Conducting systematic literature reviews. Analysts can use NLM resources for literature reviews, biomedical research, clinical decision support, and staying up-to-date with healthcare advancements, possibly applicable for new large language models.
Injuries, Illnesses, and Fatalities
Work-related injury and illness data. National Occupational Injury Data offers information on workplace injuries, including rates, causes, and demographics of injured workers.
U.S. Bureau of Labor Statistics
IIF
https://www.bls.gov/iif/data-overview.htm
Assessing workplace health and safety. Analysts can use this data for occupational safety research, workplace injury prevention, policy evaluation, and improving worker safety practices.
Low Income Home Energy Assistance Program
This federal website provides resources, tools, and a dynamic Data Warehouse to help local program administrators, policymakers, and the public access performance management information and performance measurement data for the Low Income Home Energy Assistance Program (LIHEAP).
Administration for Children & Families
LIHEAP
https://liheappm.acf.hhs.gov/datawarehouse
LIHEAP assists eligible persons and families with their heating and cooling costs.
FDA Medical Device Adverse Events (MAUDE)
Medical device safety reports. MAUDE contains reports of adverse events and product problems related to medical devices. It helps monitor the safety of medical devices in clinical use.
Monitoring the safety of medical devices post-market. Analysts can use MAUDE data to study adverse events associated with medical devices, identify potential safety issues, support post-market surveillance, and inform regulatory actions and device safety assessments.
Medicare Physician Fee Schedule (MPFS)
This website is designed to provide information on services covered by the Medicare Physician Fee Schedule (MPFS). It provides more than 10,000 physician services, the associated relative value units, a fee schedule status indicator and various payment policy indicators needed for payment adjustment (i.e., payment of assistant at surgery, team surgery, bilateral surgery, etc.).
Look up the Medicare fee-for-service reimbursement rate, RVUs, modifier amounts, and more for CPT/HCPCs procedure codes. Analysts can use MPFS data to understand Medicare reimbursement rates for physician services, assess changes in payment policies, support healthcare cost analysis, and inform decisions related to physician billing and payment under Medicare.
Medical Expenditure Panel Survey
Survey data from AHRQ on healthcare services utilization, expenditure, and insurance coverage. MEPS is a comprehensive source of data on the cost and use of healthcare and health insurance coverage in the United States. It includes annual surveys of individuals, families, healthcare providers, and employers, providing data on health status, medical service use, charges, insurance coverage, and satisfaction with care.
Analyzing the financial burden of healthcare on families. Analysts can use the Medical Expenditure Panel Survey data to analyze healthcare expenditures, assess the impact of insurance coverage on healthcare utilization, and inform healthcare policy decisions related to healthcare access and affordability.
National Mental Health Services Survey
Mental health treatment facility data. N-MHSS collects data on mental health services provided in the United States. It includes information on facilities, services, and clients.
Substance Abuse and Mental Health Services Administration
Analyzing trends in mental health services utilization. Analysts can use N-MHSS data to assess mental health service availability, utilization, and quality, inform mental health policy, and support research on mental health service delivery.
National Survey of Substance Abuse Treatment Services
Substance abuse treatment facility data. N-SSATS gathers data on substance abuse treatment facilities and services. It helps monitor the availability and characteristics of treatment services.
Substance Abuse and Mental Health Services Administration
Evaluating the availability of substance abuse treatment services. Analysts can use N-SSATS data to assess substance abuse treatment resources, support substance abuse research, inform treatment program planning, and evaluate the effectiveness of treatment services.
National Association of Health Data Organizations
Healthcare data reporting standards and data sets. NAHDO represents organizations involved in health data collection, analysis, and reporting. It provides resources and access to healthcare data sources and expertise. NAHDO is also a go-to for All Payer Claims Database resources and expertise.
Analysts can use NAHDO resources to access and collaborate on healthcare data projects, leverage expertise in health data management and analysis, support data-driven decision-making in healthcare organizations, and participate in health data research and policy initiatives.
National Health Care Surveys
CDC surveys of healthcare organizations and providers. These surveys, including NAMCS, NHAMCS, and others, provide comprehensive data on healthcare delivery in various settings, such as hospitals, ambulatory care, and long-term care facilities.
Centers for Disease Control and Prevention
NAMCS, NHAMCS, and NHCS
https://www.cdc.gov/nchs/dhcs/index.htm
Evaluating healthcare services availability and utilization. Analysts can use National Health Care Surveys data to examine healthcare utilization across diverse healthcare settings, assess patient demographics, evaluate healthcare quality, and support research on healthcare delivery and outcomes across the continuum of care.
National Healthcare Quality and Disparities Reports
Annual reports from AHRQ on healthcare quality and disparities. These reports provide information on healthcare quality and disparities in the United States, aiding in efforts to improve healthcare outcomes for all populations.
Agency for Healthcare Research and Quality
National Healthcare Quality and Disparities Reports
https://datatools.ahrq.gov/nhqdr
Monitoring progress towards health equity goals. Analysts can use these reports as valuable sources of information to understand and address healthcare quality issues and disparities, inform healthcare policy, and drive quality improvement initiatives.
National Survey on Drug Use and Health
Data on drug use in the US. NSDUH collects data on substance use and mental health in the United States. It provides valuable insights into substance abuse patterns, mental health issues, and healthcare disparities.
Substance Abuse and Mental Health Services Administration
Assessing the effectiveness of drug education programs. Analysts can utilize NSDUH data to study substance abuse trends, assess the prevalence of mental health conditions, evaluate the effectiveness of prevention programs, and inform public health strategies.
National Center for Health Statistics
National Center for Health Statistics. NCHS is the principal source of health statistics in the United States. It provides a wide range of health data, including vital statistics, surveys, and reports.
Centers for Disease Control and Prevention
NCHS
https://www.cdc.gov/nchs/index.htm
Evaluating national mental health trends, for instance. Analysts can utilize NCHS data for public health research, epidemiological studies, health surveillance, policy analysis, and healthcare planning. NCHS data covers various health topics, demographics, and healthcare utilization.
CDC National Center for Health Statistics FastStats
Quick access to statistics on topics of public health importance: FastStats provides quick access to key health statistics, including data on health conditions, health behaviors, and healthcare utilization. It serves as a resource for health data and statistics.
Centers for Disease Control and Prevention
NCHS FastStats
https://www.cdc.gov/nchs/fastats/default.htm
Supporting public health research and decision-making. Analysts can utilize FastStats for rapid access to health statistics, support data-driven research on various health topics, and inform healthcare decision-making, policy development, and public health initiatives.
FDA National Drug Code Directory
Standardized drug information. The FDA NDC Directory provides information on drug products and their associated National Drug Codes (NDCs). It is a standardized drug identifier. Search the NDC Directory with data, here: https://www.accessdata.fda.gov/scripts/cder/ndc/index.cfm
Download it here: https://open.fda.gov/apis/drug/ndc/download/
Analyzing prescription drug utilization trends. Analysts can utilize the FDA NDC Directory to access standardized drug information, support drug product identification, facilitate prescription processing, and ensure accurate drug labeling and dispensing in healthcare settings.
National Electronic Health Records Survey
Data on EHR adoption and use. NEHRS collects data on the adoption and use of electronic health records (EHRs) by healthcare providers. It assesses EHR utilization and capabilities.
Centers for Disease Control and Prevention
NEHRS
https://www.cdc.gov/nchs/nehrs/questionnaires.htm
Studying the impact of EHR adoption on patient care. Analysts can use NEHRS data to study EHR adoption trends, assess the use of EHR functionalities, inform EHR policy decisions, support research on healthcare information technology, and evaluate the impact of EHRs on healthcare delivery and patient care.
National Electronic Injury Surveillance System
NEISS collects data on injuries treated in emergency departments. It provides information on injury types, causes, and demographics.
Analysts can utilize NEISS data to study injury patterns, identify injury risk factors, support injury prevention initiatives, and inform healthcare planning and resource allocation to address injuries and reduce their impact on public health.
National EMS Information System
EMS event data. NEMSIS collects data on emergency medical services (EMS) incidents and patient care and supplies it to EMS.gov. It standardizes EMS data for research and quality improvement. More on NEMSIS: https://nemsis.org/
Improving EMS systems and pre-hospital care. Analysts can use NEMSIS data to study EMS incidents and patient outcomes, assess EMS system performance, support EMS quality improvement efforts, inform emergency response policies, and enhance pre-hospital care research.
National Health and Nutrition Examination Survey
National Health and Nutrition Examination Survey from CDC. Health and nutritional status of adults and children in the U.S. NHANES is a nationally representative survey that collects data on the health and nutrition of the U.S. population. It includes physical examinations, interviews, and laboratory tests.
Centers for Disease Control and Prevention
NHANES
https://www.cdc.gov/nchs/nhanes/visualization/
Studying obesity trends in children or studying the health and nutritional status of various population groups. Analysts can use NHANES data to assess health trends, study nutritional status, identify risk factors for chronic diseases, inform public health policies, and guide healthcare research related to nutrition and health.
National Health Expenditure Data
Comprehensive set of data from CMS on US national health expenditure. NHEA provides comprehensive data on healthcare spending in the United States, including expenditures by type of service, payer, and source of funds.
Forecasting future healthcare spending trends. Analysts can use NHEA data to study healthcare spending trends, assess the economic impact of healthcare, inform healthcare policy decisions, support healthcare research, and guide efforts to control healthcare costs and improve healthcare delivery.
National Home and Hospice Care Survey
Home health and hospice care data. NHHCS gathers data on home health and hospice agencies, services, and patient characteristics. It supports research on home healthcare and hospice care delivery.
Centers for Disease Control and Prevention
NHHCS
https://www.cdc.gov/nchs/nhhcs/index.htm
Assessing the quality of home and hospice care services. Analysts can use NHHCS data to study home healthcare and hospice utilization, assess the characteristics of patients receiving these services, evaluate service quality, and inform policy decisions related to home and hospice care.
National Health Interview Survey
Health status and healthcare access data. NHIS collects data on the health and well-being of the U.S. population, including health behaviors, access to healthcare, and health conditions. It supports health research and policy development.
Centers for Disease Control and Prevention
NHIS
https://www.cdc.gov/nchs/nhis/index.htm
Analyzing trends in health insurance coverage. Analysts can use NHIS data to study health disparities, assess healthcare access and utilization, monitor health behaviors and trends, inform public health interventions, and guide healthcare policy decisions to improve population health.
National Healthcare Safety Network
Healthcare-associated infection surveillance data. NHSN collects healthcare-associated infection (HAI) data from healthcare facilities. It assists in monitoring and preventing HAIs to improve patient safety.
Centers for Disease Control and Prevention
NHSN/HAI
https://www.cdc.gov/nhsn/datastat/index.html
Tracking and preventing healthcare-associated infections. Analysts can utilize NHSN data to monitor HAI rates, assess infection control practices, investigate outbreaks, support research on HAIs, and guide infection prevention efforts to enhance healthcare safety and quality.
National Immunization Surveys
Immunization data for children and teens. NIS collects data on childhood and adult immunization coverage in the United States. It helps assess and improve vaccine coverage rates.
Monitoring vaccination rates and improving immunization programs. Analysts can use NIS data to monitor immunization rates, identify disparities in vaccination coverage, evaluate the impact of vaccination programs, and guide public health strategies to enhance vaccine uptake and prevent vaccine-preventable diseases.
National Notifiable Diseases Surveillance System
Notifiable infectious disease data. NNDSS compiles data on nationally notifiable diseases and conditions, facilitating disease surveillance and outbreak detection. It supports public health responses.
Centers for Disease Control and Prevention
NNDSS
https://www.cdc.gov/nndss/index.html
Monitoring and managing outbreaks of infectious diseases. Analysts can utilize NNDSS data to monitor disease outbreaks, track disease incidence and trends, assess disease surveillance and reporting, support epidemiological investigations, and guide public health interventions to prevent and control communicable diseases.
National Oral Health Surveillance System
Oral health data. NOHSS collects data on oral health status, behaviors, and access to dental care in the United States. It supports oral health monitoring and assessment.
Assessing trends and disparities in oral health. Analysts can use NOHSS data to assess oral health disparities, study dental care utilization, track oral health trends, inform public health interventions, and guide research on oral health promotion and disease prevention.
National Practitioner Data Bank
Information related to healthcare providers including malpractice claims. NPDB is a federal repository of information about healthcare practitioners and entities. It includes data on medical malpractice payments, adverse actions, and more.
Find data here: https://www.npdb.hrsa.gov/analysistool/
and Public Use Data Files here: https://www.npdb.hrsa.gov/resources/publicData.jsp
U.S. Department of Health & Human Services
NPDB
https://www.npdb.hrsa.gov/
Investigating patterns in malpractice claims. Analysts can use NPDB data to assess the track record and qualifications of healthcare providers, investigate medical malpractice trends, and inform healthcare policy decisions.
National Provider Identifier/National Plan and Provider Enumeration System
NPI, addresses, status, and taxonomy information about all organization and individual providers with a National Provider Identifier (NPI). NPPES contains data on healthcare providers, including their National Provider Identifier (NPI) information. It serves as a national healthcare provider registry. Download the raw file here: https://download.cms.gov/nppes/NPI_Files.html
Mapping healthcare provider locations or locating all providers in a certain region for mapping, look up individual providers for descriptive information tied to their NPI and what taxonomy they're classified as (i.e. General Acute Care Hospital, etc.). Analysts can utilize NPPES data to verify provider credentials, support provider enrollment and claims processing, facilitate provider directories, and inform healthcare provider-related research and analysis.
Indian Health Service National Patient Information Reporting System
Healthcare data for Native American populations. Indian Health Service Data includes health-related information for American Indian and Alaska Native populations served by the Indian Health Service. It covers a wide range of health indicators and services.
Indian Health Service
NPIRS
https://www.ihs.gov/NPIRS/
Studying health disparities among Native American populations. Analysts can use Indian Health Service Data to assess the health status of American Indian and Alaska Native populations, study healthcare access and outcomes, inform healthcare programs and policies for these populations, and support research on indigenous health disparities and healthcare delivery.
National Survey of Children’s Health
Data on child health conditions and care. NSCH provides information on child health and well-being, including physical and emotional health, family characteristics, and healthcare access. It supports child health research and policy.
U.S. Department of Health & Human Services
NSCH
https://www.childhealthdata.org/browse/survey
Assessing child health disparities. Analysts can utilize NSCH data to assess child health outcomes and disparities, study social determinants of child health, inform child health policies and programs, and support research on pediatric healthcare and population health.
National Survey of Family Growth
CDC survey on family life, pregnancy, and health. NSFG gathers data on family life, marriage, contraception, and fertility among women and men in the United States. It supports research on family planning and reproductive health.
Centers for Disease Control and Prevention
NSFG
https://www.cdc.gov/nchs/nsfg/index.htm
Studying trends in reproductive health. Analysts can utilize NSFG data to study family planning behaviors, assess fertility trends, investigate reproductive health disparities, and inform policies and programs related to family and reproductive health.
National Survey of Residential Care Facilities
Residential care facility data. NSRCF collects data on residential care facilities and the characteristics of residents. It supports research on long-term care services and facilities.
Centers for Disease Control and Prevention
NSRCF
https://www.cdc.gov/nchs/nsrcf/index.htm
Studying trends in assisted living and residential care. Analysts can use NSRCF data to assess the characteristics of residential care facilities, study the quality of care, evaluate the needs of residents, and inform policies and programs aimed at improving long-term care services and facilities.
NUCC 1500 Claim Form Reference Instruction Manual
All fields on a 1500 (professional) claim. The NUCC 1500 Claim Form Reference Instruction Manual offers guidance on completing the CMS-1500 claim form, a standard form used for submitting healthcare claims to payers.
Understanding all of the fields on a CMS-1500 (Professional Claim). Analysts can use the NUCC 1500 Claim Form Reference Instruction Manual as a reference guide for accurately completing healthcare claims using the CMS-1500 form, ensuring proper billing and reimbursement in healthcare settings.
National Violent Death Reporting System
CDC data on violent deaths. NVDRS compiles data on violent deaths, including homicides, suicides, and firearm-related deaths. It supports violent death surveillance and prevention efforts.
Examining trends and risk factors for violent deaths. Analysts can utilize NVDRS data to study violent death trends, assess risk factors, inform violence prevention strategies, and guide public health interventions to reduce violent deaths and injuries.
CMS Open Payments
Data on payments made by drug and device companies to physicians and teaching hospitals. Open Payments discloses financial relationships between healthcare providers, including physicians and teaching hospitals, and pharmaceutical and medical device companies. Download the data at: https://www.cms.gov/priorities/key-initiatives/open-payments/data/dataset-downloads
Centers for Medicare & Medicaid Services
Open Payments
https://openpaymentsdata.cms.gov/
Monitoring financial relationships between healthcare providers and industry. Analysts can use Open Payments data to assess financial relationships in healthcare, identify potential conflicts of interest, support transparency in medical research and practice, and inform healthcare policies related to industry interactions.
Opportunity Atlas
The Opportunity Atlas offers data on economic mobility, allowing users to explore how childhood location affects future economic outcomes.
Opportunity Atlas
Opportunity Atlas
https://www.opportunityatlas.org/
Which neighborhoods in America offer children the best chance to rise out of poverty? The Opportunity Atlas answers this question using anonymous data following 20 million Americans from childhood to their mid-30s and mapping it. Based on where a patient/member/resident grew up or now lives, identify how their economic opportunity compares to others by using provided indicators about the residents who grew up in the community, such as Average Household Income as Adults, Birth Rates Among Teens,
Medicare Part D Opioid Prescribing Mapping Tool
Opioid prescribing rates within the Medicare Part D program. This tool provides data on opioid prescribing patterns by healthcare providers participating in the Medicare Part D program. It supports efforts to combat the opioid epidemic.
Identifying patterns and trends in opioid prescribing. Analysts can utilize the Opioid Prescribing Mapping Tool to assess opioid prescribing trends, identify areas with high opioid utilization, support opioid control initiatives, and inform public health strategies to address opioid misuse and addiction.
Physician Compare
CMS data on healthcare professionals under Medicare. Physician Compare offers information on healthcare providers, including physician quality data, performance measures, and patient experiences. Now including telehealth compare. More data here: https://data.cms.gov/provider-data/topics/doctors-clinicians
Comparing physician quality metrics. Analysts can utilize Physician Compare data to assess physician quality, compare provider performance, inform patient choices, support healthcare quality improvement, and guide healthcare decision-making.
Provider Utilization & Payment Data: Physician and Other Supplier Public Use File
Public Use Files (PUF) with data on services and procedures provided to Medicare fee-for-service beneficiaries for physicians and "other" healthcare professionals. The Physician and Other Supplier PUF contains information on utilization, payment (allowed amount and Medicare payment), and submitted charges, stratified by code and/or provider.
Look up billing and utilization trends for professional providers (dollars, volumes, services/procedures rendered) to get an understanding of that providers patterns and volumes. Analysts can use Provider Utilization & Payment Data to study Medicare provider utilization patterns, assess healthcare spending, support healthcare cost analysis, and inform healthcare policy decisions related to Medicare reimbursement.
CMS "Plain Language" website
Plain language makes it easier for the public to read, understand, and use government communications. Not quite a dataset but an interesting open source tool
Centers for Medicare & Medicaid Services
Plain Language
https://www.plainlanguage.gov/
Use this to find "plain language" explanations of healthcare, regulation, policy, and technical instructions for your data storytelling, labeling, or explanation of complex concepts.
SAMHSA Data Archive
SAMHDA is a one-stop shop for SAMHSA public use data with online analysis tools. Collection of surveys related to mental health and substance use. Behavioral health data from the Substance Abuse and Mental Health Services Administration. The SAMHSA Data Archive offers access to various datasets related to substance abuse and mental health. It supports research and policy analysis in these areas.
Substance Abuse and Mental Health Services Administration
SAMHDA
https://www.datafiles.samhsa.gov/
Assessing trends in substance use disorders. Analysts can use SAMHSA Data Archive resources for substance abuse and mental health research, epidemiological studies, program evaluation, and policy analysis.
Surveillance, Epidemiology, and End Results Cancer Statistics
Comprehensive source of cancer statistics in the US. SEER Cancer Statistics provides comprehensive cancer incidence and survival data for the U.S. It covers various cancer types and demographics.
National Cancer Institute
SEER Cancer Statistics
https://seer.cancer.gov/
Assessing cancer survival rates by race and ethnicity. Analysts can use SEER Cancer Statistics for cancer research, epidemiological studies, cancer surveillance, and assessing cancer outcomes and disparities.
State Health Access Data Assistance Center (SHADAC)
State-level data on health insurance coverage and access. SHADAC compiles data related to health insurance coverage and access to healthcare. It includes state-level health insurance data.
State Health Access Data Assistance Center
SHADAC
https://www.shadac.org/state
Analyzing the effects of health policy changes on insurance coverage. Analysts can use SHADAC data to assess healthcare access, inform health policy decisions, study health insurance trends, and support research on healthcare access disparities.
AHRQ Surveys on Patient Safety Culture
Data on patient safety culture across Hospital, Medical Office, Nursing Home, and more. AHRQ's SOPS surveys collects data on the experiences of patients in medical offices. It helps assess and improve the quality of care provided in outpatient settings.
Agency for Healthcare Research and Quality
SOPS
https://www.ahrq.gov/sops/index.html
Assessing the impact of safety culture on patient outcomes. Analysts can use the Medical Office Survey data to evaluate patient experiences in medical offices, identify areas for improvement in outpatient care, assess patient satisfaction, and inform quality improvement initiatives.
CDC State Tobacco Activities Tracking and Evaluation (STATE) System
Tobacco legislation data. This database contains information on state-level tobacco control legislation, policies, and regulations. It helps track and analyze tobacco control efforts at the state level.
Centers for Disease Control and Prevention
STATE
https://www.cdc.gov/statesystem/index.html
Evaluating the impact of tobacco control policies. Analysts can use the Tobacco Legislation Database to assess state-level tobacco control policies, evaluate the effectiveness of tobacco control measures, support advocacy efforts, and inform public health strategies aimed at reducing tobacco use and its associated health risks.
State Cancer Profiles
Cancer incidence and mortality data by state and county. State Cancer Profiles provides cancer-related data for each U.S. state. It includes cancer incidence, mortality, and risk factors.
National Cancer Institute
State Cancer Profiles
https://statecancerprofiles.cancer.gov/
Creating targeted cancer prevention and control strategies. Analysts can use State Cancer Profiles to assess cancer burden by state, identify trends, inform cancer control programs, and support cancer research and prevention efforts.
Kaiser Family Foundation State Health Facts
Health data for all 50 states and the District of Columbia. State Health Facts offers comprehensive state-level health data on various topics, including health insurance, healthcare costs, Medicaid, and more.
Kaiser Family Foundation
State Health Facts
https://www.kff.org/statedata/
Comparing Medicaid coverage across states. Analysts can utilize State Health Facts data to compare health statistics across states, assess state-specific healthcare challenges, inform state health policy decisions, and support research on state-level health trends and disparities.
AHRQ State Snapshots
State-level healthcare quality data. AHRQ's State Snapshots provide state-level healthcare quality data and comparisons, helping policymakers and healthcare professionals identify areas for improvement.
Agency for Healthcare Research and Quality
State Snapshots
https://www.ahrq.gov/data/state-snapshots.html
Comparing healthcare quality between states. Analysts can use State Snapshots data to assess and compare healthcare quality across states, identify disparities, guide healthcare policy decisions, and target quality improvement efforts effectively.
Tobacco Use Supplement to the Current Population Survey
Tobacco use data. TUS-CPS gathers data on tobacco use behaviors, attitudes, and exposure to tobacco-related information. It supports research on tobacco control and public health.
National Cancer Institute/National Institutes of Health
Assessing the effectiveness of smoking cessation programs, for instance. Analysts can use TUS-CPS data to study tobacco use patterns, assess the impact of tobacco control policies, evaluate anti-smoking campaigns, and inform strategies for tobacco cessation and prevention.
UB-04 Data File
All fields on a UB04 (institutional) claim. NOTE: CMS publishes information (https://www.cms.gov/medicare/coding-billing/electronic-billing/institutional-paper-claim-form) but the NUBC maintains this form and has additional datasets for licensing, such as a data file that contains all the possible values for each field, and their definitions (https://www.nubc.org/license)
Analyze the fields submitted alongside facility claims, including multi-claim stays, emergency department non-professional component, inpatient admissions and more.
HRSA Data Warehouse (including UDS)
Health resources and services data. The HRSA Data Warehouse contains various datasets related to healthcare services, workforce, and resources, primarily focusing on underserved populations.
Health Resources and Services Administration
UDS
https://data.hrsa.gov/
Analysts can use HRSA Data Warehouse data to support research on healthcare access and disparities, analyze healthcare workforce trends, inform policy decisions related to underserved communities, and assess the impact of healthcare programs and initiatives.
HRSA Data Mapping Tool
A mapping tool for health resources and services data. The HRSA Data Warehouse contains various datasets related to healthcare services, workforce, and resources, primarily focusing on underserved populations.
Health Resources and Services Administration copy
UDS
https://data.hrsa.gov/maps/map-tool/
Mapping locations of healthcare facilities in underserved areas. Analysts can use HRSA Data Warehouse data to support research on healthcare access and disparities, analyze healthcare workforce trends, inform policy decisions related to underserved communities, and assess the impact of healthcare programs and initiatives.
United Network for Organ Sharing (UNOS)
Organ transplantation data. UNOS manages the U.S. organ transplant system and collects data on organ donation, transplantation, and waiting lists.
United Network for Organ Sharing
United Network for Organ Sharing
https://unos.org/data/
Studying outcomes of organ transplantation procedures. Analysts can use UNOS data for organ transplant research, organ allocation policy development, monitoring transplant outcomes, and improving the organ transplant process.
United States Renal Data System
Chronic kidney disease and end-stage renal disease data. USRDS compiles data on chronic kidney disease and end-stage renal disease (ESRD). It supports research on kidney disease epidemiology.
Analyzing outcomes for dialysis patients. Analysts can utilize USRDS data to study kidney disease prevalence, outcomes, treatment patterns, and inform policies and interventions for kidney disease prevention and management.
Veterans Health Administration (VHA) Data
Veterans’ health services data. VHA Data includes healthcare-related information for U.S. veterans who receive healthcare services through the VA system.
U.S. Department of Veterans Affairs
VA
https://www.data.va.gov/
Analyzing healthcare utilization patterns among veterans. Analysts can use VHA Data to assess veterans' healthcare utilization, study healthcare outcomes for veterans, inform VA healthcare policies, and support research on veterans' health and well-being.